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Alone we can do so little; together we achieve so much! NEWS UPDATE: OCTOBER 2008 Welcome to the October news update. As many of you know we are now online and we are uploading information on a regular basis. The website also contains a blog so if you would like to contribute we would like to hear from you We welcome your comments and suggestions. If you have any information that you would like to share with others please let us know and we will be happy to circulate it in the next newsletter. If you are reading a copy of this email forwarded to you by a colleague we may not have your contact details. If you would like to guarantee a regular monthly copy of the mailing send your details to info@dignifiedrevolution.org.uk Dignity is more than just a word Tuesday 18 November 2008 The Open University in This event is now fully booked. However, we are running a similar event on Monday 26 January 2009 at RNIB Cymru, If you would like details please email us GOOD NEWS CORNER Are you proud of your practice? If so, who not share it with others. ‘What the Trust expects’ Regarding Dignity & Respect The session included the DVD: ‘What do you see? The DVD promoted much discussion and feedback included the following: m really informative, made me think about how to interact with patients m very thought provoking and the whole group were able to discuss their thoughts m the film was evocative and informative m fantastic DVD, very informative. I now more that ever want to make a difference to someone m informed us of the importance of maintaining dignity and respect of the patient in our care and how the patient may feel if not paid dignity and respect m I felt I learnt a lot, it was nice to hear from the patients m showed us a lot of important issues to take on board when dealing with people The session has been discussed within the pre registration team and based on the impact and the positive evaluation it has been agreed that the session will continue to be included in the local pre registration nursing and midwifery induction events. Details of where to obtain the DVD can be found in the resources section below. We also recently met with From activities in which we have recently been involved and from the discussions that we have had over the last month we are aware that activity to promote dignified care is increasing. We hope therefore, that to see the good news corner flourishing over the coming months! ACTIVITY Welsh Assembly Government Dignity in Care National Coordinating Group We attended the second meeting of the above group. An update from the meeting will be posted on our website soon Welsh Assembly Government social care sub group A Dignified Revolution was represented at the first meeting of the Welsh Assembly Government Social Care SubGroup. Following the meeting our representative was asked to step down from the group because she lives in Review of the Older People A representative of A Dignified Revolution participated in a Healthcare Inspectorate Wales (HIW) meeting on 22 October 2008 which was focused around the review of the Older People Age Concern Roadshow Porthcawl We visited the Age Concern Roadshow in Porthcawl on 17 October 2008 Porthcawl Older People’s Forum We met a member of Porthcawl older people’s forum and we have been asked to send our leaflet to circulate to forum members We have been contacted by the Cardiff Older People’s Forum Meeting with the Gwent Federation of Women We met with members of the Gwent Federation of the Women We have also been invited to give a short presentation at the Gwent Federation WI conference next year. It was suggested that we contact the Training for novice nurses We have been invited to participate in the Cwm Taf NHS Trust novice nurse programme We will be facilitating a session on 16 December for newly qualified mental health nurses Southern Cross Nursing Homes - dignity committees We are planning to deliver the half day seminar that we have recently held in Raising awareness at the We have been invited to present the work of A Dignified Revolution to an inter-professional group at the Improving the quality of life in care homes We met with Help the Aged Cymru to discuss My Home Life, an initiative designed to improve the quality of life of those who are living, dying, visiting and working in care homes for older people. The programme has been running in Age of We attended Age Concern Cymru During the post presentation discussions There was also discussion about older people being able to access benefits more easily and Dr Millington gave an example of a successful initiative whereby the Citizens Advice Bureau had been invited into the GP surgery Development of guidance for the care of older people On 6 October we participated in a workshop designed to consult on the Nursing & Midwifery Council Nursing & Midwifery Council (NMC) stakeholder event On 29 September we attended a Nursing & Midwifery Council (NMC) stakeholder event in Welsh translation of A Dignified Revolution’s leaflet You will recall that, a couple of months ago, the Welsh Language Board very kindly translated our leaflet into the Welsh language. Well, we have now received an offer from a graphic artist to transform the translation into a leaflet. We will let you know as soon as the leaflet is ready for circulation Welsh Language We are grateful to Ansawdd Language Services who have kindly provided us, at no cost, with a Welsh translation of ‘A Dignified Revolution’ and headings from our training flyers Department of Health dignity in care campaign From recent communication with the project manager for the Department of Health Gala celebrity evening to highlight the importance of human rights and dignity of older people We have been invited to provide our leaflet for circulation at a celebrity gala evening being held at BAFTA, Piccadilly, Website promoted on Intute A link to our website has been included on the Intute website. Intute is a free online service that provides access to good quality web resources for education and research, selected and evaluated by a network of subject specialists NEWS Commissioner launches first report New advisory group to develop national dementia plan A new group of health professionals and experts will oversee the development of a national dementia plan for Wales The group will produce a draft plan for consultation by April 2009 Inquiry into domestic abuse in Age Concern Cymru recently presented evidence at a Welsh Assembly Community and Culture Committee inquiry into domestic abuse in They were supported by a specialist advocate from Age Concern North East Wales who was able to provide front line evidence of the issues through case studies. For more information email louise.hughes@accymru.org.uk Feeding back? learning from complaints handling in health and social care This report from the National Audit Office (NAO) found that navigating complaints systems is not straightforward, particularly for health service users, and handling some complaints takes too long New care home complaints system to offer elderly residents better service Sweeping changes are to be made to the regulation of Britain's 13,900 care homes, including a new complaints system and tougher inspections for large private operators Calculating the cost of efficient care homes This study refines the formula published by the JRF in 2002 (revised 2004) for calculating reasonable fees, based on the operating costs of efficient care homes for older people in Older people This report injects the voices of older people into the debate about reform of primary and community care. It outlines findings from research commissioned by Age Concern in order to inform both national health policy and local NHS commissioners and service providers. The research gathered evidence of older people Report from dignity champion workshops A series of dignity workshops have been held across the Eastern region in m what dignity means m the values of the dignity in care campaign m how to measure performance on dignity m exploring the reasons why people aren m how dignity champions can work to improve dignity and respect m what is required to support dignity champions in their role m action planning on dignity Report from Dignity Champions' workshop Brief report from Dignity Champions' workshops Human rights in healthcare: reports from learning events This is a group of three reports from national human rights in healthcare learning events held across the m human rights and equality in healthcare m human rights learning and development m human rights and commissioning The reports provide an overview of the events and highlight key learning and discussion Mental health worker to fight for the elderly A mental health worker has become a dignity champion in the fight for better treatment for older patients across Worcestershire. Carole Dinshaw is backing the Government-led campaign to protect the rights of older people so they are treated with courtesy, respect and dignity while they receive healthcare. Dignity Champions include health and social care managers and frontline staff. They also include doctors, dieticians, porters, care workers in care homes, MPs, councillors, and members of local action groups. People who use care services, their relatives and carers as well as members of the public are also becoming Dignity Champions Compassionate care in The Leadership in Compassionate Care project is a collaborative venture between Report on research to support the National Service Framework for Older People This report summarises the key findings from a group of 16 studies on older people FEEDBACK End of life care “I have just returned to work following a period of compassionate leave following the death of my mother. I heartily agree with your findings at the end of life experiences you encountered, it mirrored my situation exactly .It makes me think this situation which is driven by funding, rather than individual patient needs is fairly common. We need some radical changes to attitudes” Newsletter "I just wanted to share with you this newsletter is absolutely superb, an excellent resource. Thank you so much" RESOURCES We have previously mentioned some of the resources that A Dignified Revolution has available but it is always worth adding a reminder to the news update. Please email or tel: 07811 159800 to request copies of the case studies, the writing guide or for an advice and information sheet mentioned below Case studies If you have ever wondered why A Dignified Revolution was established then you need to read our case studies. The personal experiences of Founder Members were the driving force and the case studies, written by some of them, provide an insight into the undignified care that vulnerable older people are often subjected to in the hospital setting Writing Guide Whilst it is probably the last thing that you want to think about when faced with a stressful and unfamiliar situation we would encourage you to keep a diary of events. This could be helpful in: m calming your nerves m better understanding the situation in which you are involved m establishing what information you need to help make an informed decision about your care, or that of a relative m making a complaint should you feel that this is a necessary course of action In order to assist you we have developed a writing guide that provides advice on what information you need to document and gives suggestions for keeping a diary Information and advice sheet There is a wealth of information produced to help and to advise older people on the care that they should expect. However, it does not always reach them. This document provides a list of useful booklets and contact details for support services Age Current and past copies of A Dignified Revolution news updates can be found in the newsletter section of the Age Alliance Wales website With the support of Tunstall, Carers UK has published a new guide to telecare. The guide explains how telecare can be used to benefit carers and provides an overview of the products available and how to obtain them Age Concern The Age Concern LifeBook is an easy-to-use and safe method of recording the practical details of your life without making them a bother either for you or your loved ones. The LifeBook has six sections: m personal details m life contacts m financial m documents m possessions m final wishes To obtain your free copy either telephone 0845 685 1061 or visit the website where you can download a copy Write to Them Write to Them is a website that provides you with details of your Councillors, MP, MEPs, MSPs, or DVD - what do you see? This powerful 10-minute film aims to raise awareness of how society treats older people. The film takes a journey through a day in the life and a life in the day of stroke victim Elsie, played by actress Virginia McKenna OBE. Elsie craves compassion and understanding of the person she is on the inside rather than the useless ‘carcass A training pack to go with the film What do you see? specializing on person centred care will be available January 2009. Pre- orders are being taken. Also, a new film on end of life care “the big adventure” will be available in January as will “home” a short film starring Virginia McKenna again focusing on entering a care home. For more information visit www.amandawaring.com Human rights in healthcare: a framework for local action The Department of Health, the British Institute of Human Rights and five NHS trusts have worked in conjunction to produce this framework. It is intended to assist NHS trusts to develop and apply human rights based approaches in their organisations to improve service design and delivery Dignity – make it a workplace priority Practical support to help nursing staff make dignity a workplace priority is the aim of new campaign materials recently unveiled in Assessment of pain in older people The British Pain Society has worked with the British Geriatrics Society and the Royal College of Physicians to review the current evidence in the literature and to produce sound guidance to help all practitioners in assessing for the presence of pain. The guidance will be of use to all healthcare professionals working with older people including those in hospital, in the community and in care homes The Open University Learning Space gives free access to a wide range of learning materials. Ageing and disability: transitions into residential care considers working with people in group care and residential settings. Although many of the practice examples in this unit relate to work with older people, the values and principles surrounding this work also apply to other service users who make transitions to and from care, for example, children being accommodated or people with learning disabilities FORTHCOMING EVENTS Adverse psychiatric side effects of medicines & coming off medicines Thursday, 6 November, 2008 For more information email millie@april.org.uk Choosing protection: the annual all Wales adult protection conference Thursday, 6 November, 2008 Metropole Hotel, For more information tel: 020 8765 7000 or email daisygoodstien@elderabuse.org.uk THE FUNDING OF A DIGNIFIED REVOLUTION The common experience of how close relatives, whilst in hospital, had not been treated with respect and, as a result, lost their dignity led a group of individuals to establish A Dignified Revolution in January 2008. A Dignified Revolution aims to ensure that older people are cared for with dignity and respect in hospital. We do this by raising awareness of dignity and respect issues to health professionals and to the general public All our events and publications are provided free of charge. If we do not receive sufficient donations, then we pay for the difference out of our own pockets. If you would like to help, we would like your time most of all. However, some cash would also be useful. £15 covers the cost of a person attending an awareness day; £30 covers the cost of printing and posting 100 leaflets; £100 covers the cost of one trip between North and Donations will help us to continue our work – so please give generously if you think our cause is worthwhile. Not a penny will be spent on administration or overheads – we don’t have any! Cheques should be made payable to A Dignified Revolution. We want to remain focussed on our goal of helping older people retain their dignity whilst in hospital. In order to avoid being diverted onto other issues and priorities, we do not seek statutory sector funding (although unsolicited grants will be accepted). So your support is important and will help to make a difference. ACKNOWLEDGEMENTS We would like to thank the following people for giving their time and expertise to help develop resources to support A Dignified Revolution: Lance Webster – for the design of our logo John Dixon – for the development of the website An individual (who would like to remain anonymous) for her production of our leaflet The Welsh Language Board – for the translation of our leaflet CONTACT DETAILS A Dignified Revolution Britannia House, Tel: 07811 159800 Fax: 01446 774864 Website: www.dignifiedrevolution.org.uk |
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